I wrote the below back in February. I was feeling so defeated. 19 months of the same result tends to kind of wreck a person.
“I have decided to take a break. I feel as though life is telling us to take a step back. We rushed into treatment with the thought that it would bring us this miracle cure. And while we have only done 2 rounds of IUI, the 8 medicated cycles have taken a toll on my body and my mental health. Every month that the positive doesn’t come beats me down a little more and it becomes harder to believe that it ever will. This is a very difficult decision to make. But we very much went from mourning our son to trying again without truly processing what one meant in relationship to the other. I have been wrapped up in the thought that another baby would mean that I was fixed or that I didn’t fail, while knowing in my heart of hearts that another baby could not replace Lincoln. So we are going to pause, maybe indefinitely.”
Little did I know that a month later, life would throw us a curve ball that would cement this decision. Kyle and I are moving back to Indiana. He starts his new position on April 8. We are busy packing and prepping to put our house on the market by the same day. With the timing and the work we have going on, we are foregoing treatment for a while. It is strangely freeing to not worry about my next ultrasound appointment, picking up meds, making sure I take the meds correctly, have Kyle giving me shots, taking a test even though I know it will be negative. Not to mention, that I don’t have the mental anguish of am I or aren’t I. No two week wait, no over analyzing every possible symptom. So while it is hard to stop trying, I can’t wait to be back in Indiana.
Aunt Flo has shown her face at my door again this month. The process has been the same for the last 16 months. I ovulate, we baby dance, I beg, bargain and plead with whoever will listen for 2 and a half weeks that this will be the month I see a little plus sign on that little plastic stick. But still she comes. The first day is ok. I think, “we will try again.” The second day, the despair and worthlessness set in. And let’s talk about that term, Aunt Flo. You want to picture this little old lady with reading glasses on the end of her nose, showing up with her little red bag of feminine hygiene products and pain reliever for your discomfort. But really she has shown up to tear down the walls of the home you have built for your baby. She says “fine, you don’t like it, here have some cramps, have a migraine.” No woman really likes getting her period, but I have come to loathe mine. For so many years I was programmed to think about baby proofing my body when really it has been teflon-coated all along. But most of all I have come to dread the “comforting” things that people will tell me. That our baby will come, we just need to relax, that I need to hurry up so I can be pregnant with them. Instead, I wish that someone would tell me that it is ok if we never have a living baby. That my worth doesn’t depend on that plastic stick. That I am a mom either way. That my worth as a woman doesn’t depend on whether my uterus can build a human. I know many are rooting for us. And I am too. But in order to “relax” I need to know that it is ok if we don’t have another baby. That my future has meaning and purpose no matter what kind of mom I am.
We are postponing round 2 until next month. My lining is looking much better but we only have one egg this month. We decided to save our funds and see if we have better odds. So my RE is planning to increase my dosage and we will continue on.
Our first round of treatment was unsuccessful. I’m not going to say failed, because I am watching my language. Even my RE was disappointed. All of our numbers looked promising. So we get to try again. I am changing my mantra from “No baby this month” to “we get to try again.” We are making a change to the medication we are using, as my RE felt that my lining was a little thin. As I was sitting on the exam table, I thought “how did this become my life.” It has become the norm to talk about ovulation, endometrial lining, egg count. I have had 5 ultrasounds in a month. I am a pro at putting my feet in stirrups. I know that I need to bring socks because my feet often get cold when I wait. I have to make sure my bladder is full or empty depending on what the ultrasound is meant to see or do. At the end of 2017, all I wanted for 2018 was a baby. Unfortunately that didn’t happen. As 2018 comes to a close, I am trying not to focus on what we don’t have. I am focusing on continuing to take steps. Small steps of 2% change. I can’t say what 2019 will bring. I am not terribly optimistic that this time next year will be any different. But we will keep trying.
I met with my therapist yesterday. I had not seen her in over a year. So much has happened in that time. I lost my job and secured a new one, I started co-leading a group of women who are trying to lose the weight of grief that comes with losing a child. I have made strides forward and taken steps back. I still carry so many of the aspects of my grief around with me everyday. So my therapist gave me some homework. She suggested that I find some stones and paint or decorate them to represent the things that I need to let go of; then I am going to take a walk and physically throw them away. So I have been thinking about the stones that I carry.
Failure of my body. – This is something that I know I will work on for a long time. I feel as though my body is broken. Something wasn’t right that cost Lincoln his life. I also feel that whatever that is, is keeping us from having a second child.
Fear – I actually need 3 stones for fear because I carry 3 types. I carry the fear of miscarriage. The chances of miscarriage after a still birth are real. I also carry the fear that we will have another stillborn child. The odds of this are fairly rare but it happens. I know. I have met loss moms who have multiple pregnancy and baby losses. The third fear is the strongest of all, and that is the fear of never having a living child, the fear of never having children that can be seen.
Jealousy – This is another that I think I will have to work on for a long time. Dealing with these feelings of “why did she get a baby and I didn’t.” Getting eaten up with envy as friends and family continue to announce new life.
Unworthiness – I constantly struggle with the feeling that I have done something that I need to be punished for. My child was taken because of some act that needed repentance in the form of my son.
Mistrust of life – When things go right, I am always waiting for the other shoe to drop. I don’t trust that the good times will last. I am always waiting for the next tragedy that will bring me down.
My therapists suggested that when my anxiety is talking I need to stop and think about my thinking. Try to stop the spiral. And throw the stones away. Even if I have to throw them away again and again. Sometimes I will need to go back and pick one up because I am not ready to let them go. And there are parts of my grief that I will always carry. The love of my son, the wish to know what he would look like, act like, smell like. The fact that he made me a mother.
Today, I am thinking about my tribe. I am facing a test today that is giving me a little bit of anxiety (ok a lot of anxiety). I am having a bubble test done. Without going into too much detail, they are testing to ensure that my Fallopian tubes are clear of any blockage. It is just one more step in our baby journey. Because of this test and my aforementioned anxiety, I have reached out to my tribe. I need some reassurance that all will be well, because I am assuming the worst. My mom, my sister, my sister-in-law have all heard my cries of what if. They are all always there for me. I never have to worry that they will listen or offer the shot in the arm I need. They pick me up when I am unable to carry my baggage. I am also part of this amazing group of women, who I only know through Facebook. They are the reason that I have finally lost my 15 pounds of grief weight. We listen to each other, understand each other, and rally each other to keep moving. And that is nothing to say for my husband and what he does for me. So I know when I walk into that exam room this afternoon, I will be lifted up by this amazing group that I call my tribe. And for that I am thankful.
I am in a funk. To start, it is holiday time. We survived Thanksgiving. But I was very disappointed again that few people talked about Lincoln unless I brought him up first. I get all kinds of responses when I post on social media but when in person, people seem to avoid the topic. It makes me want to scream and yet I wonder if it is something I should just accept. I read a post by another loss mom about this same thing. At the time her words resonated with me but now they are lost. I can’t remember what she said that at the time seemed so insightful. How can I accept that others don’t mention my son? It feels like betrayal. I hear all the time that people don’t know what to say. I don’t know that I can tell you the exact words, just let me know that you are missing him too and say it first. Don’t wait to see how I am feeling or if I might bring him up. Because of course I miss him, of course he is on my mind. Every. Single. Day. And now I am dreading Christmas. I am dreading the effort it takes to decorate, but I feel this need to make things sparkly and bright. As though that might ease the hurt in my heart that I won’t have to tell my toddler not to play with the ornaments or my other breakables. Lincoln should be here to share in the wonder of this season. He even has his own stocking now. There was a visitor at our office last week. My CFO has a grandson named Lincoln, born a month after our Lincoln. He was wandering around picking up phones and anything he could get his hands on. My heart ached with the thought of my mischievous little boy and all the things he should be getting into. On top of all of this, we are struggling to get pregnant again. We have been trying for close to a year with no success. And we don’t know why. We have met with a new doctor, who is running tests to get to the root of our trials. But when he looked at our initial results, his response was “Everything looks great, why aren’t you pregnant?” I don’t know. I am finally feeling like I am getting my health back on track. But even that has added to my gloom, as I finished all 8 weeks of a new program. I want to start over, but can’t seem to find the drive that kept my going the last 2 months. I just feel as though I am in a quagmire of melancholy. I fear getting stuck but the more I struggle, the more I stay in the same place.